Making Our Way

Team Joseph
  • 5.0 (20)
  • MENTAL HEALTH
Making Our Way

Making Our Way is a place for conversations about some of the toughest and best moments in life. The inspiration is Duchenne muscular dystrophy, but this is a show about people - and their stories. The messy, the magical, the motivating, the community-building, and the heart-tugging. This is about how we make our way through the difficult, the unimaginable, and the regular everyday heartache. We share stories about carving our path forward, having a hand in creating what comes next. This is really just a podcast about life....and how we lean into it as we make our way.

  1. 18H AGO

    Not Giving Up - Vivian's Story

    In this powerful and deeply personal episode of Making Our Way, we sit down with Vivian, a single mother caring for her son who is living with Duchenne muscular dystrophy. She opens up about the emotional aspect of caregiving—the quiet moments of exhaustion, the light moments of joy, and how she digs deep to draw on strength—even when she doesn't have much left to give. This conversation isn’t just about Duchenne. It’s about love and a tender connection between a mom and her son. It's about every parent who’s ever felt overwhelmed. Every caregiver who’s ever hidden their pain. And every person who’s ever had to keep it all together, even when they’re falling apart.

    30 min

  2. 12/28/2024

    A Season of love, hope and connection

    Who’s up for an exhale? We have a little gift for you at the end of the year - in this mini episode, we’re reflecting on the gentle guidance and wisdom from past guests - beautiful reminders of the uniqueness of our journeys, and the profound impact of allowing the hard stuff in life to sit right there alongside adventure, love, and joy. Sometimes hope is simply the belief in possibilities—and there is always the possibility for new beginnings. As we head out of the holiday bustle and into the freshness of a new year, we hope you can take a few minutes to pause and reflect. Enjoy!

    14 min

  3. 10/30/2024

    Reaching New Heights For Duchenne With Tonya Dreher

    We are coming to you today with a special update from one of our most popular guests. We’ve talked to Tonya Dreher before and she is one of the most adventurous and genuine people that I know. If you haven’t heard her before, I encourage you to listen to her other episodes after you listen to this one - you don’t need to listen to them in order. I promise you it’ll be worth your time! We recorded this episode with Tonya a few months ago when she was back in Nepal focusing on her work in the muscular dystrophy community. She is heading back to Nepal again soon -- working diligently to bring care to children who go without even the basics. We are so so lucky to witness her creativity and her determination. She is literally changing the world one family at a time.

    28 min

  4. 06/27/2024

    A Space Of Our Own: Creating a Conference for Adults with Duchenne

    Today we’re joined by not just one guest, but SIX special people who not only joined us for this podcast, but who generously gave their time over the past 7 months to create something really special. Each one of these guys is passionate about helping and empowering people with Duchenne muscular dystrophy to find meaning, purpose, and be aware of all the possibilities in life that they can explore. They’re working with our Team Joseph staff to plan out the first conference exclusively for older adolescents with Duchenne. They’re taking time away from their work, spending time with their friends and family, from school, and from their individual goals to make sure we create something powerful for others living with Duchenne. And they know a lot about this because they all have Duchenne themselves. It’s been incredible to see and share in their enthusiasm, dedication, and passion as this conference has come together – whether you have a connection to Duchenne (or not!) this conversation is a beautiful example of purpose, generosity, selflessness and the building of community. Welcome to this very special episode featuring the Planning Committee behind our conference titled “What Now? Possibilities in Adulthood with Duchenne” -- a conference FOR people with Duchenne, planned BY people with Duchenne. This is one of the most heartfelt and earnest conversations we’ve ever had. You can literally FEEL the spirit and heart of this group! Let’s get started.

    25 min

  5. 04/10/2024

    Showing the World What I'm Capable of with Darrel Nicklow

    Meet Darrel Nicklow, a 25 year old entrepreneur from Florida who has done more, seen more and been through more than most of us do in a lifetime. He was diagnosed with Duchenne muscular dystrophy before he turned 5 years old. At the end of seventh grade, Darrel’s heart began to fail and he was in the hospital for 400 days while he waited for a heart and recovered after the transplant. Now, he has come out on the other side as a young man with humility and a fierce desire to leave his mark. He is an incredible example of determination and hope. Darrel graduated high school in 2016 and attended college to earn a degree in media design. In the meantime, he began the company Limitless Designs. He now does freelance graphic design work and loves making beautiful images for his clients. Initially, he wanted to be a chef, but had to pivot career paths because his muscles couldn’t keep up with the physically demanding work. In our podcast episode, Darrel shares his journey from an athletic early childhood to being diagnosed with Duchenne muscular dystrophy, pivoting career paths, what his recovery process was like after his heart transplant and what his dream life looks like. Tune in to hear about Darrel’s inspiring story of resilience, optimism and gratitude. Hear about his Youtube channel, which showcases his community’s underrepresented sports teams, talent and people.

    28 min

  6. 03/05/2024

    From Riches to Rags to Purpose with Molly MacDonald

    After losing her home, her marriage, and her financial security, Molly had to start over in her 40’s. After beginning to rebuild her life – a new husband, a new job..... she was diagnosed with breast cancer. While still struggling to make ends meet, in line at the food bank to feed her 5 children, Molly decided to address the need for families to have financial support while going through treatment....through that, the Pink Fund was born. She shares how she went from a life of incredible privilege to one of struggling to get by....from “riches to rags” as she says, and ultimately to a life of purpose and connection. Molly is the epitome of determination and heart. Her story is one of overcoming, and ultimately it’s a profound example of the power of community.

    37 min

  7. 02/01/2024

    Love Can Move Mountains - with Heather Hay and Jena & Phil Huber

    In our last episode, Nate Plasman shared his story about his little boy’s diagnosis with a rare disease and the battle to get him into a clinical trial. Today, we’re looking at what can happen once that drug is approved by the FDA and doctors can begin to prescribe it. I’m talking to 2 families who live on opposite sides of the country, but were brought together in the fight of their lives. For so many of us facing the unimaginable – a loved one battling an illness or disease for which there is no cure – it seems that an approved treatment could be the answer. But oftentimes, that approval is the beginning of another heart-wrenching fight. The fight for access to that treatment. Our story today focuses on the June 2023 FDA approval of Elevidys – the first approved gene therapy for 4 and 5 year olds with Duchenne muscular dystrophy. Heather Hay, and Phil and Jena Huber share their families’ experiences, their deep commitment to helping other children get access to a treatment, and their fierce belief that a community can drive change. This is the individual and unique experience of these 2 families and our focus is not so much on the treatment itself as it is on what families go through and how love can move mountains.

    40 min

  8. 01/17/2024

    Fear, Hope and a Clinical Trial with Nate Plasman

    We’re going to kick off the New Year with this really special episode. If you need a dose of hope and encouragement – you are in the right place! I’m talking with Nate Plasman. Nate and his wife are parents to 3 kids and when their youngest, Andrew, was still a baby they started to notice that something wasn’t right. When Andrew was diagnosed with Duchenne muscular dystrophy, amidst the devastation and fear, Nate became a fierce advocate for his son and moved mountains to get him into a clinical trial. He was instrumental in changing the course of his own son’s life, and now he’s determined to do the same for other kids. I do want to say that this is one father’s – and one child’s – story. This is about their unique experience in a clinical trial, and one particular company’s treatment that is the first approved gene therapy for Duchenne. Every experience is personal and there are and will be so many stories to tell – I hope that today you enjoy hearing about this sweet family. This is a special story of fear, of faith and doubt, of dreams, and miracles.

    46 min
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Trailer

5
out of 5
20 Ratings

About

Making Our Way is a place for conversations about some of the toughest and best moments in life. The inspiration is Duchenne muscular dystrophy, but this is a show about people - and their stories. The messy, the magical, the motivating, the community-building, and the heart-tugging. This is about how we make our way through the difficult, the unimaginable, and the regular everyday heartache. We share stories about carving our path forward, having a hand in creating what comes next. This is really just a podcast about life....and how we lean into it as we make our way.

Information

  • Creator
    Team Joseph
  • Years Active
    2021 - 2025
  • Episodes
    38
  • Rating
    Clean
  • Copyright
    © 2025 Making Our Way Team Joseph

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